Navigating Everyday Life with Inflammatory Bowel Disease (IBD)

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One of the conditions that may lead to someone having stoma surgery is Inflammatory Bowel Disease. As the 19th of May is IBD Awareness Day, we wanted to explore the various ways to look after yourself if you suffer from IBD.

If you’ve recently been diagnosed with inflammatory bowel disease, it doesn’t necessarily mean you will have to have stoma surgery. Each case is individual, and there are many different treatment options and medications available. 

What is IBD?

Living with IBD, a group of conditions that include Crohn’s disease and ulcerative colitis, can be challenging. IBD is characterised by chronic inflammation of the digestive tract, leading to a variety of symptoms such as:

  • severe diarrhoea
  • abdominal pain
  • weight loss
  • fatigue

Apart from these physical symptoms, the disease often takes a toll on mental and emotional health, which can lead to anxiety, stress, and even depression. Here are some practical tips for navigating everyday life with IBD and addressing the emotional and mental health aspects of the condition.

Try to Establish a Healthy Lifestyle

A healthy lifestyle is crucial for everyone, especially for individuals living with IBD. This involves maintaining a balanced diet, regular physical activity, adequate rest, and avoiding harmful habits like smoking or excessive alcohol consumption. A dietitian can help you identify any dietary triggers and create an individualised meal plan that provides essential nutrients without exacerbating symptoms. Regular physical activity can boost your energy levels, support a healthy immune system, and help in managing stress.

Understand Your Disease

Knowledge is power when it comes to managing a chronic illness like IBD. Understanding your disease, its triggers, symptoms, and treatment options can help you make informed decisions about your care. This understanding can also help alleviate some of the fear and uncertainty that often accompanies a chronic illness. Consult your GP and use reputable sources to learn more about IBD.

Manage Stress

Living with a chronic disease can be stressful, and stress can trigger IBD flare-ups. It’s essential to develop effective stress management techniques to help navigate the ups and downs of life with IBD. This could be mindfulness meditation, deep breathing exercises, yoga, or spending time with friends and family. Regular physical activity, even at minimal levels, can also be an excellent stress reliever.

Seek Support

A support network is vital when dealing with IBD. This can include family, friends, your doctor, and others living with the condition. Support groups, both in-person and online, can provide a space to share experiences, advice, and encouragement. Remember, it’s okay to ask for help when you need it.

Pay Attention to Mental Health

IBD can significantly impact mental and emotional health. The ongoing physical symptoms, along with the unpredictability of flare-ups, can lead to anxiety and depression. It’s essential to acknowledge these feelings and seek help if needed. 

Regular Check-ups and Medication Management

Regular checkups with your GP are essential for managing IBD. These allow for monitoring of the disease, adjusting medications, and addressing any new symptoms or concerns. It’s also crucial to take prescribed medications as directed, even when feeling well, to prevent flare-ups and maintain remission.

Plan Ahead

The unpredictable nature of IBD can make day-to-day life challenging. Having a plan can help manage these uncertainties. This might involve knowing the locations of bathrooms when out and about and having ready access to medications.

Practice Self-care

IBD can be tiring, both physically and emotionally. Make sure to take time for self-care activities that you enjoy and that help you relax. 

Living with IBD is undoubtedly challenging, but with the right strategies and support, you can maintain your quality of life. Remember, it’s okay to have difficult days and to reach out for help when needed. 

For more information, visit the Crohns and Colitis Foundation or the NHS website.

 

If you use a bladder or bowel appliance and would like to join our panel of experts and have your voice heard, please click here to apply. 

 

 

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